Your State Statistics

Finding information about your state:

Below is a presentation given by Desiree Kameka, Director of Community Engagement & Housing Network at Madison House Autism Foundation, on current statistics that bear evidence of the hurdles adults with autism and other I/DD’s (Intellectual/ Developmental Disabilities) face in adulthood as well as policy changes that influence their current and future home, work and community options.

“I believe the state prohibition of access of waiver funding to a person’s chosen residence or least restrictive setting that would otherwise put them at risk of forced institutionalization, violates Olmstead.”

– Desiree Kameka

View PDF of presentation by clicking the image below:

 

Other Resource Links:

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Autism Housing Network

The Autism Housing Network exists as a platform for creating and sharing great housing options and resources for autistic adults and others with intellectual / developmental disabilities (I/DD). It is comprised of a categorized Housing Directory of over 100 listings, Resource Directory for those exploring and developing housing, Blog of site visits and housing news, and soon to be functioning Forum. It is still in BETA (or testing), and they are open to feedback.

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State of the States on Developmental Disabilities: State Statistic Generator

Find your state ‘Profile’ that visually represents over 20 years of data: information about the growth of waivers and residential options in your state, how many people with I/DD are being served, how funding has fluctuated, where people with I/DD are accessing support, supported employment and family support data, etc.

NCI

National Core Indicators: Statistic Generator

NCI is a voluntary effort by developmental disabilities agencies to measure and track their own performance (data not available in all states). The core indicators are standard measures used across states to assess the outcomes of services provided to individuals and families.  Indicators address key areas of concern including employment, rights, service planning, community inclusion, choice, and health and safety. You can generate charts for your state using many different filters.

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United Cerebral Palsy: The Case for Inclusion Statistic Generator

UCP has released a report every year since 2006 that shows how well each individual state is performing overall; how each state matches up against other states regarding data measures; and, most importantly, the top performing states with policies and practices that UCP believes should be replicated. You can also generate a ‘State Scorecard’ that will give you visuals describing waitlists, HCBS and ICF data, competitive employment and family support, and the UCP overall ranking of your state.

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2014 Priced Out Report

A biennial national rental housing study documenting the severity of the housing affordability crisis experienced by the lowest-income people with disabilities. This report includes county specific housing shortages and other important statistics about the lack of affordable housing across the country.

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2012 National Survey on Abuse of People with Disabilities

The 2012 Survey on Abuse of People with Disabilities is the first national survey of its kind – one that focuses on incidents of, responses to, and attitudes about abuse or crime victimization of children and adults with disabilities. Abuse is still occurring in the community, at high rates, decades after the push to close institutions that were deemed the cause of abuse. It is clear that attitude, not location, is the cause of abuse.

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HCBS Advocacy: State Specific HCBS Links

Sponsored by the AUCD, HCBSadvocacy.org is a platform for the aging and disability communities to post information and resources regarding the new HCBS settings rule and steps each state is making to comply with the new rule. You can find state specific documents, deadlines, website links, and articles as well as links to the Final Rule, fact sheets on the Final Rule, CMS guidance to state leaders regarding the Final Rule, and other advocacy tools from different organizations perspectives.